my ice bucket challenge

I got not 1 but 3 nominations for the latest "craze"… the ALS ice bucket challenge- done to raise funds for ALS.  Incase you have been living under a rock this is how it works… You get nominated by someone to either dump a bucket of ice water over your head or donate $100 to the ALS foundation and you have 24 hours to make that happen.  It's done great things for creating awareness of ALS, a life changing disease that affects roughly 1 in 50,000 people.  It's awesome to see how this has taken off… and it got me thinking…

1 in 4 pregnancies result in loss; miscarriage, still birth, infant loss (like we experienced with TJ).  1 in 4  that's 25% of pregnancies.  Before Tyler, I knew that the first 12 weeks of pregnancy were "in the danger zone".  Now I know that while the first 12 weeks carry the greatest chance for a miscarriage there is still a chance for something to "to wrong".  What BLOWS MY MIND is that NO ONE TALKS ABOUT IT!  I read What to Expect When Your Expecting and it doesn't talk about all the OTHER things that can happen after the first trimester.  Society as a whole is silent about pregnancy and infant loss- yet it affects so many.  HOW?  WHY?  Yes it's a horribly sad topic.  But why are we not talking about it?  Why do grieving mothers get "the look" at the mere mention of a lost baby?  Why is it a taboo topic?  Why does Facebook feel that pictures of pre-term babies are unacceptable and are removed yet there is no issue with nearly nude photos, extremely suggestive photos, or any variety of other offensive pictures?  I could spend all day asking questions…

I want to help break the silence!  Lifetime started by airing a movie about stillbirth called Return to Zero.  There are many organizations that support pregnancy and infant loss, yet no one seems to know about them.  Have you heard of:
 Now I Lay Me Down to Sleep  They provide professional photographs of babies who have passed while in the hospital- free of charge. I treasure my pictures of TJ more than words can describe!
Sweet Pea Project  The offer comfort, support, and guidance to grieving parents AND send blankets to hospitals so that grieving parents can have something that "belongs to baby"
 or  Held Your Whole Life?  This organization provides hand stamped personalized necklaces (for mom) and key chains (for dad).  Having something with your child's name can be helpful in feeling like they are not forgotten.
Again- I could list these for days… different organizations that raise funds to prevent any number of pregnancy complications that can occur...

March of Dimes is probably the best known organization that speaks to pregnancy and infant loss but that's because they fund research and have developed procedures that save babies- they aren't as known for the support they offer to grieving parents.

Those are just a few of the MANY "unknown" organizations that exist to support the 1 in 4 who know the heartache of this type of loss.


Here's how we are going to break the silence… instead of dumping a bucket of ice on my head- I'm heading to the local blood bank to make a donation (as soon as I am eligible to donate again).  A bucket of cold water doesn't do anything to help someone else… a needle and a half hour of your time can save up to 3 lives!

I challenge you to break the silence of the 1 in 4!  Make a blood donation or donate to one of the organizations above.  (Be a superstar and donate to all 4!)

Know someone who has lost a baby- Ask her how she is really doing.  Speak baby's name.  Give her a hug and let her know you haven't forgotten.
I promise you it will make the day of a mother of an angel baby!

Awful Arthur

This is only a month and a half late… What you are about to read was typed in the car… I delayed posting as we recovered from the ride and celebrated the 4th…and then delayed some more just for good measure…
 So here you have it… Thoughts from our OBX vacation that ended early thanks to Hurricane Arthur.

It's 1:30 am Wednesday night/Thursday morning... I'm sitting in the passenger seat of a very loaded down Jeep... In tears as my week long vacation is ending 3 days early... 

Hatteras Island faces a mandatory evacuation 5am Thursday... Ummm- I LOVE OBX but I have a strong dislike for lots of traffic AND for being forced to take the long way... Matt's dislike for those things is even more intense than mine... And so we packed and left...

And like any 31 year old- I cried... 

This was an AWESOME vacation... Some very much needed reconnection time with the man I love... The calm before we begin our fertility treatment journey... 

The OBX has always been our place- it was our first real vacation together and a place we have visited every year... Where we went on our honeymoon, and where we went after we lost TJ... It's just been out retreat from life- we love the slow pace, lack of "busy" things to do, and daily trips to the beach or sound... Not to mention its DOG FRIENDLY- Dutchess used to vacation with us!  

This year was Clara's first trip... This year should have been TJ's first trip… 

I was so busy enjoying the trip that my photos are limited… but here are a few...

We had fun taking Clara to bounce at the ocean!

We listened to Sundays message from LCBC while sitting on the beach (2 votes from the Dietrich's for a LCBC-OBX campus!)

We made a sand castle for TJ.

 

We rode wave runners! (Checked one off the bucket list!)

We spent hours floating over waves and sitting under the umbrella... Just relaxing- loving life!

We hit up our "must" stops- Howard's Pub & the Slushie Stand on Ocracoke (yay ferry ride), Top Dog, Village Conery (Clara walked there with us and had her first soft serve ice cream experience), and our last meal was crabs from Austin's South Island Seafood.  It was good eating!  

We broke in our new kicks.

OBX 2014 was all lined up to be an amazing vacation.

Until it was time to leave... Suddenly my heart felt heavy- like I was leaving without a goodbye- only what adult needs to say goodbye to the beach?!?  

Then I remembered I had wanted to write in the sand... 

All week my heart had been full, peaceful as I soaked up the beauty of God's creation. And then as I faced leaving it I felt a separation coming... 

I recognized that heavy heart- it had been hiding for a while... Always there but kindly keeping to its self UNTIL NOW- 7pm as we pack to evacuate and end our vacay.  Hello the heart if a grieving mother... There is not a moment that I don't miss my sweet angel, but this was intense!

I woke Matt from his nap, leashed up Clara and headed to the beach...  This needed to happen

But first we found TJs sandcastle, in decent shape considering we had built it 10 hours prior.

It was perfect to see- but started the waterworks.  We sat in the sand and talked about missing our boy... About how the beach seems to calm our hurting hearts... About how we weren't ready to leave- but were actually excited to have a nice house to go home to…

It was just a rough night... Even now- my heart has me wanting to just sob... The ugly cry- the cry from deep down that you save for the biggest of hurt... 

The beach should have been so different... Life should be so different... Most days I do ok with the fact that it's not... Today wasn't one of those days... 

Maybe tomorrow will be better... 

And if you are reading this- it means we have arrived safely home and are hopefully sound asleep.

Rainy Wednesday

It's been a while… I have a few posts that have been sitting in cue (including one from the beach- YIKES!) that I should really just edit and post… but tonight I offer you some insight into the randomness filling my brain on this rainy evening.

As has become the norm for my life- today was anything but what I expected it to be… I was supposed to wake up, handle some necessary bill paying, wash wallpaper glue off some walls, do some laundry, play with Clara, go to dinner with friends and take care of some chores around the house.
Necessary bill paying required a trip to my parents to use their fax machine (YAY property taxes!)… while I was there my mom asked me to go with her to visit my Aunt.  My Aunt has spent the better part of the last 2 weeks at my Uncle's side as he battles cancer in the hospital.  I quickly decided that wallpaper glue could just spend another day or two as the decor of my powder room and jumped in the car for a visit…

I'm no stranger to cancer and the effects it has on people… I saw is slowly take life from my Pap and I watched my Mom Kick Cancer's butt!!!  I know it's not kind- and I know the helpless feeling as you just sit there and watch and wait and realize all you can do is Pray.

I thought we were going to offer a some hugs and a few minutes of friendly faces for my Aunt.
This was a good afternoon- vitals were favorable (YAY no fever!) and we got a short visit with my Uncle.  At first I was struck with how he looked like Pap, even though my Uncle married into the family.  His hair color had changed after chemo treatment, and he had traded in his standard golf polo for a pair of flannel PJ's.  My Uncle had always been a pillar of strength in the family- to see him in such a frail state was a challenge, even though I thought I was prepared.
It didn't take long for some of his old spirit to appear!  We walked a few laps with him around the floor.  Lap 1 was met with cheers from the nurses- that brought smiles as we walked.  Lap 2 he was still feeling good…
Lap 3 brought a flashback of childhood memories.

Side note:  My Aunt and Uncle always hosted family Easter gatherings.   This always includes an Easter egg hunt.  You can't have an easter egg hunt with my family without properly warming up.  Warm up exercises are always led by my Uncle.  It's normally quite the sight  and a tradition I missed this year!

As we rounded the corner to start lap 3 my Uncle announced, "This is a nice straight away.  Stretch the legs.  Nice deep breaths.  This feels good!"  I giggled.  I pictured a room filled with kiddos taking lunging steps with him, preparing to find All the Eggs.  

Lap 4 was a battle of wills- he wanted to keep going… my Aunt thought 4 was enough for now and Mom agreed.  So we returned to the room.  

I spent a few minutes talking with him.  He asked how I was liking LCBC.  We talked about my involvement with Jcrew and camp. He smiled.  Then he asked about Matt.  The smile on his face grew as I shared that Matt was also involved and loving LCBC.  He was happy to hear that we had found a church where we could be involved and grow.  Yay for being able to provide a bit of non-medical brightness to a rather dreary day.

We said our goodbyes and headed for home.  

The chores never happened… the glue is still on the wall… I did do a load of laundry and spent some time playing with Clara… and I paid a few bills… dinner with friends was traded for a stop in to see the hubby at work and refuel him with some iced coffee…

For a not very productive day, I was beat, but it was so worth it!

 And now I need to get some rest because this chic is taking a van full of kids to "The Sweetest Place on Earth" tomorrow!